Programs & Services

The mission of ALS in the Heartland is to provide the highest quality of support and care for ALS patients, their caregivers, and families. This agency, now over eleven years old, was founded by ALS patient families to provide care and support to those living with ALS in Nebraska and western Iowa.  Every service is available to each family and all services are free of charge.  We hope you will reach out and allow us to assist you and the ones you love.

Education, Guidance, and Support

ALS in the Heartland has been honored to work with hundreds of families impacted by ALS.  Our primary goal is to provide support, disease education, and guidance through the Patient Services team.  Every individual is connected with an agency Patient Services Support Worker to answer questions, connect to needed services, and provide emotional support.  These services can be provided in person, by telephone, or through other means such as Skype, e-mail, or text.  Individuals and families may also find ease in using the agency’s Telehealth program which provides high-definition webcams to allow for secure, expedient connection to the Patient Services team.  Register for Agency Services

Respite Grant Program

Often a big concern for individuals and families touched by ALS is quality in-home care.  Balancing the emotional and physical needs of caregivers can be an ongoing challenge.  Respite care is intended to provide a safe environment for the patient while the caregiver addresses personal needs and daily responsibilities. Respite can relieve stress and prevent caregiver burnout. To help with this, any ALS patient who resides in Nebraska or western Iowa, and who is registered with ALS in the Heartland, is eligible to apply for the Respite Grant Program. ALS in the Heartland provides payment to a professional home care agency or individual for respite care. Register for Respite Support

Equipment Loan Program

ALS in the Heartland loans or purchases various equipment at no charge, such as mobility items, communication devices, shower/tub chairs, and daily living aides.  We also have access to other community resources that loan equipment.  Click here to view the Equipment Booklet.  For any equipment loan inquiries or to request specific information, please contact the Equipment Coordinator at 402.592.2374 x204 or dijah@alsintheheartland.org.

Transportation Support

ALS in the Heartland provides services and support across hundreds of miles.  Often individuals diagnosed with ALS are required to travel for ALS Clinic appointments, medical exams, research activities, and support groups.  To assist with these travel expenses, simply fill out this request form and our agency can assist you: ALS Transportation Support form

Information and Community Resources

Our agency has a variety of ALS specific information available, as well as referrals to numerous community resources.  Please reach out to ALS in the Heartland for reading materials, relevant videos, and helpful websites on everything from basic information about ALS to detailed descriptions about all facets of the disease.

Referrals to experienced Medical Professionals

ALS in the Heartland has a good working relationship with ALS Clinics and medical professionals that specialize in ALS throughout the area, and can assist individuals in accessing appropriate and needed medical services.

Volunteers

Our agency has a team of volunteers who are willing to help patient families with everything from yard work to building a ramp for easier accessibility to their place of residence. Volunteers are also available for companionship, respite, and assistance with household errands or chores.

Advocacy and research

ALS remains a rare and often unknown disease.  ALS in the Heartland strives to increase community awareness of this disease as well as promote research efforts both in our local area and those that are occurring on a national basis.  Additionally, ALS in the Heartland is involved in legislative advances in Nebraska, Iowa, and the entire United States that would benefit individuals and families impacted by ALS.